privacy policy | contact us | Duchenne Foundation
the blue ball

About Duchenne

Research

The very best news is that where there was once only despair, there is now real hope.

Science is rapidly coming to grips with genetic diseases and research is progressing many options for a cure for Duchenne muscular dystrophy. There is also a great deal of research into the development of therapies prolonging mobility and strengthening cardiac and breathing muscles.

With your support we know we can buy many young men more time, precious time - to walk, to run and to play.

So far, this effort is working. In the 1960s, the likelihood of a boy with Duchenne reaching the age of 25 years was zero. In the 1980s, 12% of boys with Duchenne lived to 25. By the late 1990s, this had climbed to 53% due to improved care and greater research investment.


Professor Hoey

The very best help is to get more research done worldwide, and faster.

Members of the international Duchenne network, UPPMD, have a long list of projects proposed by labs and scientists with proven track records and commendable dedication. But they need money to fund their own work and that of team members. Importantly, Australia is a leading contributor to real science being carried out today in an effort to find cures for Duchenne and other forms of muscular dystrophy.

Progress, yes, but the research effort needs to be accelerated. Every year many boys lose their fight against Duchenne muscular dystrophy.